On Saturday the experts interacted intensely with patients, their relatives and caregivers, which was highly appreciated by both sides. The conference was organized by the “Stichting Voor Sara” and MHeNS Maastricht University together with (bio)medical students of the Honour’s Programme of FHML. “Stichting Voor Sara” was founded three years ago by the parents of Sara Verbrugge, who suffers from MDC1A. “De Volkskrant” reported on the conference, the commitment of the parents and the research in Maastricht by the group of Bert Smeets to develop a cure for MDC1A.
Read the article (only in Dutch available).
Listen to the interview (in Dutch).